United Mitochondrial Disease Foundation @UMDF
UMDF powers the research, education, & support that is advancing treatments for patients and families affected by mitochondrial disorders. umdf.org Pittsburgh, PA Joined April 2009-
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Dr. Robin Lanzi, Professor of Health Behavior and Psychology at The University of Alabama at Birmingham, and a #mito mom, was recently on @WBRCnews to highlight #LHON and the importance of #LHONAwarenessDay. wbrc.com/video/2026/09/… #WorldMitoWeek2026 #PuttingMitoOnThemap
Today's the day to go GREEN! Our very own Margaret Moore, Associate Director of Support and Education, captured Niagara Falls supporting #WorldMitoWeek2026 and standing with the #mito community for #LightUpForMito. #PuttingMitoOnTheMap
On #LHONAwarenessDay, we stand with everyone living with Leber Hereditary Optic Neuropathy (LHON and LHON-Plus), their families, and the entire #mitochondrialdisease community. We are grateful for partners like the LHON Collective who collaborate to move this work forward.
Join the #LHON webinar taking place, Saturday, September 19, from 7–9 am EST (1-3 pm CEST) for “Best practices in LHON – stories from the community.” To register, visit: us06web.zoom.us/meeting/regist… #LHONAwarenessDay #WorldMitoWeek2026 #PuttingMitoOnTheMap
Living with #MELAS and having lost both her mother and brother to #mitochondrialdisease, Andria Clarke knows firsthand why awareness matters. This #WorldMitoWeek2026, join Andria and the mito community in #PuttingMitoOnTheMap.
Today and every day, we’re grateful to the Jeremiah Gracen Tk2d Foundation for all they do to raise awareness and advocate for the #mito community. Watch Aneesa’s important message during #WorldMitoWeek2026 and join us in #PuttingMitoOnTheMap.
Today is #mtARSAwarenessDay and you can take action by learning more about Mitochondrial ARS (Aminoacyl-tRNA Synthetase) Disorders and sharing this post. Visit UMDF's types page to learn the symptoms of mtARS disorders. umdf.org/mtars/ @cure4ars #WorldMitoWeek2026
Show your support for #WorldMitoWeek2026! Register, join, or donate to support UMDF’s Energy for Life Walks in Kansas City and Wisconsin, or our Delaware Valley Kick-Off all taking place on Saturday, September 19. #PuttingMitoOnTheMap energyforlifewalk.org
#WorldMitoWeek2026 is still going strong. Join patients and families from the #mito community at one of UMDF’s virtual Support Meetings who are coming together and #PuttingMitoOnTheMap. Click the link to visit our events calendar. umdf.org/events-calenda…
UMDF is proud to be a member of the Leigh Syndrome International Consortium, a global patient-driven research network aiming to accelerate new treatments and therapies for patients living with #LeighSyndrome. #WorldMitoWeek2026 @4Lilyfoundation @AusMito
This #LeighSyndromeAwarenessDay, learn more about this rare, neurometabolic disorder by watching our Living with Leigh Syndrome discussion that took place at #MitoMed2026 in Orlando, FL with session moderator Lori Martin. youtube.com/watch?v=3IeYLx… #WorldMitoWeek2026
Less than one percent of the 300-plus known #mitochondrialdisease variants have an FDA-approved treatment. That's not a research gap – it's a research emergency. Tell Congress to fund #mito research this #WorldMitoWeek2026. Take action: mitoadvocacy.org/wmdw/
What is Leigh Syndrome and what causes it? This #LeighSyndromeAwarenessDay, visit UMDF’s types page on Leigh Syndrome that breaks down the disease, symptoms, and treatment options. Visit umdf.org/leigh-syndrome/ to learn more. #WorldMitoWeek2026
Our UMDF staff are raising awareness during #WorldMitoWeek2026 and #PuttingMitoOnTheMap in their own communities. Watch the video to see which activities they’re doing during our Virtual National #Mito Movement Challenge happening now and visit energyforlifewalk.org/national to join.
Behind every statistic is a child, a family, and a story that deserves to be seen 💚 Join us in #PuttingMitoOnTheMap by sharing this post and spreading awareness for the #mito community. #WorldMitoWeek2026
Every action matters this #WorldMitoWeek2026! Whether you join UMDF at an upcoming Energy for Life Walk or participate in our Virtual National Mito Movement Challenge, no action is too small to make a difference. Visit umdf.org/world-mitochon… to take action.
Mitochondrial disease steals energy from every cell in the body – and too many families are fighting it without a voice in Congress. This #WorldMitoWeek2026, ask your House Rep to join the Congressional #MitochondrialDisease Caucus. Take action: mitoadvocacy.org/wmdw/
#WorldMitoWeek2026 is the perfect time to raise awareness about #mitochondrialdisease. Share the facts with your friends, family, and online community. Every post, share, and conversation helps bring greater visibility to the #mito community. #PuttingMitoOnTheMap.
Starting today, the Perry County Courthouse will go green for #WorldMitoWeek2026 for the first time! Thank you to #mito mom, Jody Thompson, for #PuttingMitoOnTheMap in Ohio. To learn more, check out this clip from @WHIZnewscom: bit.ly/4AgabWo
Behind every post, every shared story, and every conversation about #mito, there is a person making a difference. This #WorldMitoWeek2026, we are asking everyone to add their voice. Visit mitopatients.org/mito-week and umdf.org/world-mitochon… to find resources you can use and share.
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Coriell Institute @Coriell_Science
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Sheldon @SheldonSnyder
191 Followers 145 Following America Party 🇺🇸. Walking to Canada From Texas for Mitochondria research.
zhihang feng @fengzhihang
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João Henrique Chrusc... @ChruscielJoao
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Jessica Kain @jkain703
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martina magistrati @martymagistrati
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Mighty Therapeutics @Mighty_Tx
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UPMC @UPMC
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Mito Mom @buffy2506
482 Followers 736 Following I am an advocate for the United Mitochondrial Disease find a cure for my daughter Baylee and proud momma to Ohio Univ graduate Jade
Sebo @french_sebo
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Lissa Poincenot @LHONpoince
184 Followers 110 Following Leber's Hereditary Optic Neuropathy (LHON) is a rare genetic disorder that causes sudden blindness. Raising awareness, connecting families, & raising funds.
Rachael Pipp @RachaelPipp
83 Followers 69 Following hi i'm 36 years old, I have a mitochondrial disease, I like to hang out with friends and have a good time!You might like
