Anne Melchior @MinnesotaRed
Joined April 2009-
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We’re excited to be presenting at 𝗪𝗢𝗥𝗟𝗗𝗳𝗮𝗶𝗿™ 𝟮𝟬𝟮𝟲!
Meet the Engage Health® team! bit.ly/4r4GVOm
A big thank you to our summer interns, Harper and Matthew! We’re grateful for all the hard work, dedication, and contributions you brought to Engage Health® this summer. We truly appreciated having you both on the team! Wishing you all the best as you head back to school!
Rare disease patients are scattered across the globe. For over 25 years, Engage Health® has connected them with the researchers, advocacy groups and healthcare organizations working to reach them. Learn more about Engage Health and our EnCompass® database today!
Someone in your rare disease community is making a difference. Have you told them? Nominate your Rare Disease Difference Maker and help us share their story 👉bit.ly/4bC6aBg
Learn how the team at Engage Health® can support your next research initiative: engagehealth.com | [email protected]
We’re proud to bring 25+ years of research experience, meaningful engagement, and actionable insights to the rare disease community. Have a research initiative on the horizon? We’d love to connect [email protected] | (651) 994-0510
Another major advancement for the mitochondrial community this year, and one that will make a profound difference for TK2d families. Congratulations to all who have been advocating, researching, and supporting this work. @UMDF @MitoAction
HUGE NEWS! The FDA has approved UCB’s Kygevvi (doxecitine and doxribtimine) to treat the mitochondrial disease thymidine kinase 2 deficiency (TK2d). You can find the full prescribing details and announcement here: bit.ly/4hH4Yhr
We were proud to partner with @SmithSolve and the @AmNmFoundation on the Late-Onset Neuromuscular Disease Consortium (LONDC) on this study. To review the full study, link here: tinyurl.com/4s8m5skj
Last week at #NORD #BreakthroughSummit, SmithSolve’s EVP Katie Burns spotlighted the urgent need for better recognition and referral pathways for Late-Onset Neuromuscular Diseases (#LONDs).
Looking forward to connecting next week with current and new colleagues at NORD & excited to share insights from our collaborative poster with Dyne Therapeutics and the Myotonic Dystrophy Foundation @MyotonicStrong
We’re looking forward to joining the conversation at the NORD Rare Diseases & Orphan Products Breakthrough Summit®, taking place in Washington, D.C.! We’d love to connect with you. To schedule a time to meet, contact Anne at [email protected] or call 651-994-0510.
Looking forward to being at #nordsummit2025 in Washington, D.C.! Reach out if you’ll be there — I’d love to connect!
We’re excited to announce that we will be attending the NORD Summit, taking place October 19–21, 2025, in Washington, D.C. They would welcome the opportunity to meet with you during the event. Contact Anne at [email protected] or call 651-994-0510.
We're still celebrating the approval of Forzinity (elamipretide) for use in Barth syndrome patients, making it the first form of #mitochondrialdisease with an FDA-approved therapy. In case you missed UMDF's letter last week, you can read it here: umdf.org/fda-approves-e…
We're grateful for the nomination from @HealthcareMN as 2024 Startup of the Year and would appreciate your support to vote for TeleRare Health! Vote here: lnkd.in/guGiChwR
We're thrilled to announce that TeleRare Health has been nominated as a finalist for @Healthcaremn's 2024 Startup of the Year Award! ***VOTE to support TeleRare Health's mission and help us be named Startup of the Year: lnkd.in/guGiChwR
From all of us at TeleRare Health, we wish you a joyful holiday season filled with happiness and good health! See how TeleRare Health can help you in the new year at telerarehealth.com #telerarehealth #virtualclinic #telehealth4rare
The holidays are hectic—getting answers for your health shouldn’t be. Schedule a consultation with TeleRare Health and start 2025 with clarity and confidence. #telerarehealth #virtualclinic #telehealth4rare Schedule an appointment today at tinyurl.com/2kz868bx
Coming soon: TeleRare Health will start accepting commercial insurance, Medicaid, and Medicare! Follow us on FB, Instagram, LinkedIn, and X for updates! #telerarehealth #virtualclinic #telehealth4rare Learn more at telerarehealth.com
TeleRare Health is a virtual rare & genomic clinic with years of experience in rare disease research & patient advocacy. We provide specialized virtual care to the rare disease community. #telerarehealth #VirtualClinic #telehealth4rare Learn more at telerarehealth.com
🚨 IT'S RARE DISEASE DAY GLOBALLY! 🚨 Join us marking #RareDiseaseDay 2024! Spread awareness, share stories, and support those living with rare diseases. Together, we make a lasting impact! #ShareYourColours
Feb 29 is #RareDiseaseDay 1.Spread the word share this post and use #RareDiseaseDay 2.Attend an event planned in our home state ofMinnesota MNRareAdvocacyDay, March 5: tinyurl.com/m5fuz4ey MNRareDiseaseDay, March 7: tinyurl.com/37n9x3zp #RareDiseaseDay #RarestDayoftheYear
Thanks @Eagangirlsbball and @kat_simonsen26 !
Please join us in the fight against cancer at our home game tomorrow night! We are partnering again this year with the American Cancer Society/Coaches vs Cancer to BOX OUT CANCER. 💚💙 #coachesvscancer
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