Seeking uniform UK pregnancy screening practices. Change sought to FASP guidelines. Fetal cardiac views should be retained.change.org/Mollys_Missing… South Yorkshire and BassetlawJoined April 2024
Why can't the public have "a good grasp" on PPD CHD detection rates at "centre" or trust level?
Why do we still have regional reporting by ICS, ICB or STP? Is there correlation with record retention protocol at 20 weeks?
📢 The latest National Cardiac Audit Programme (NCAP) Annual Report, featuring 2024/25 national data, alongside the Second 2025 Patient, Carer & Public Report are available to view. Check them out via the link below 👇
🔗 nicor.org.uk/national-cardi…
📢 The latest National Cardiac Audit Programme (NCAP) Annual Report, featuring 2024/25 national data, alongside the Second 2025 Patient, Carer & Public Report are available to view. Check them out via the link below 👇
🔗 nicor.org.uk/national-cardi…
We believe a standardised approach that sees the archiving of #cardiac views at fetal anomaly screening is in the interests of both patients & health professionals. Read more here: ow.ly/fqau50XplcN#chd#chdawareness
Our CEO Jon and Deputy CEO Anne are at #BCCA2025 in London connecting with global #CHD experts. 💙 As well as having a stand, we're delighted to have been selected to share our work on the archiving of fetal cardiac views in the form of a poster presentation.
Currently our figures suggest;
11 trusts retain images and clips
55 trusts retain images only
48 trusts don't retain anything
2 trusts retain the situs view only.
2 trusts have hospital sites retaining and not retaining views.
#CHD#pregnancy#congenitalheartdefect
Data storage costs have been suggested as a reason trusts can't retain views. Patients are also prevented from filming their own scans on their phones, not because it interferes with equipment, but because sonographers would be distracted and sonographer privacy compromised🤷♂️😳🙃
Update 25; These are the trusts that are not retaining views (responses received so far) chng.it/z2gR7PSLtN via @UKChange
Please help us get emails to these trust CEO's via your local MP
62 trusts have advised they retain fetal cardiac views, 48 trusts have advised they don’t. 2 trusts have advised they have hospitals that do both. 10 trusts are yet to respond to our FOI's 3 months later. Currently, we figure that’s 56% of trusts that retain and 44% that don’t.
We're still waiting on 10 trusts to respond.
If you'd like a copy of our spreadsheet drop us an email on [email protected]
We've provided it to the CRG. We understand our data may be linked with some more specific national detection data that is being collated.
56% of trusts retaining fetal cardiac views at the 20 week scan is significant. “The standard of care provided by a competent ultrasound practitioner is that which the majority of similar individuals would provide" (Society of Radiographers).
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