Dax Ponder (Dan Moore) @Talmandaniel
Novice Rapper, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him pempod.com Northumberland, UK Joined October 2011-
Tweets21K
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Followers5K
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Following3K
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Likes44K
Why not spend an hour with James and I as we plumb the depths of human suffering and creativity and then come gasping up for breath, never to speak again. I so wish we could have talked more. Thank you Galen, James' mum for making this possible.
James mined for gold in Sauron’s gaze. Two years ago, while living with Severe ME the genius who was James Strazza joined me to record what turned out to be a very important podcast. It was never released. In May this year James died. Today you can listen to our conversation.
@Sally_writes Belated response to belated post! Happy belated birthday. Don't you just love the word 'belated'? I do.
Hey all. Please watch our latest update on the Post Exertional Mayonnaise you tube channel. We're both going through some tough stuff and we kinda need your help. Please forward me your messages of support for Dov as he recovers from cancer surgery that took place yesterday.
@NickBarnes63 It's going to be some season!
Hey all! If you're able, please can you go here (link in next tweet) and vote for a very good man @MichaelBowers15 for this community award. It's well deserved!
Podcast update (Including update on Rich) available on our YouTube channel now! We have been rather absent recently but hoping to get back up to speed soon!
HELP! I'm looking for two former public service professionals (health, education, social care etc) who live with ME/long covid/an energy limiting condition who have the ability to video call with me fortnightly for 45 mins to help me on a secret project. Pls share far & wide!
Thanks everyone for your birthday wishes. I had a great time with my kids in Scotland navigating around Dundee and Edinburgh in my power chair. I'll hopefully be tweeting more again going forwards. I'm dreaming big for three new projects for the #MyalgicE community...
Dax Ponder (Dan Moore) retweeted
When the BPS cabal continue their attacks on #pwME & #LongCovid & our allies & on the scientific evidence, it's worth remembering this, "The best resistance to misinformation disinformation bullying & trolling is *the truth* " - Fergal Keane
@cfs_jo How dare he talk about my Internet mum like that?!!
... I'll need your support and guidance. It's going to take time but I'm really exited and I hope we all reap the benefits!
Lizzy H @hopefullizzy
8K Followers 3K Following 31y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Dan 🦠➡️🧠�... @Dan_Wyke
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Anil van der Zee © @AnilvanderZee
11K Followers 897 Following Former professional ballet dancer | Bed- and wheelchair bound M.E. patient | Using ✖️ to raise awareness for #pwME | #IACI #art2cureME #pwme #millionsmissing
Christoph Ströck @cstroeckw
9K Followers 823 Following Soon, people will look back in disbelief at what happened to patients with ME/CFS | Co-founder @weandmecfs | Godspeed 🙇🏼
Katy B @KatyBruce108
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Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Adam @ABrokenBattery
8K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Jo @cfs_jo
4K Followers 2K Following ME & POTS, Still me. Sense of humour intact. Proud “Anti-Recovery Activist” (sarcasm). “Privileged senior adult child” - Brad
John K @j_b_kennedy
17K Followers 6K Following I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling
Naomi Harvey “PhD W... @Naomi_D_Harvey
17K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
davidtuller @davidtuller1
11K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Vlad Vexler @VladVexler
24K Followers 1K Following Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Grew up in USSR, Isr, UK. Home is London | Living with ME since 2003. | 🔗 🎥
Billy Hanlon @bhanlon15
14K Followers 14K Following ME/CFS | Long COVID | IACC | https://t.co/Qitpgq8anF
Paula Knight @Paula_JKnight
6K Followers 3K Following Author Illustrator Comics Creator THE FACTS OF LIFE (Myriad) Kidlit books x3 author. Disabled. Bedridden 8yr v severe M.E. IG: @paulajkstudio
Sibylle Dahrendorf �... @sibylle_berlin
7K Followers 3K Following ex-filmmaker, home & bedbound due to complex chronic illnesses, mcas, cci, pots, sfn, fq & flagyl toxicity, longlyme, longpathogens, longsomething, longlist
Phoebe Boag @PhoebsBo
3K Followers 3K Following Life is being autistic and chronically ill with ME and writing about it. Doodle artist. Smorky's human. She/her.
#MEAction Network @MEActNet
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Bea is Chronically Pe... @Be_Kinderr
10K Followers 2K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Tess Falor, Ph.D. | R... @tessfalor
10K Followers 7K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
Zachary dereniowski @Zacharydero1ed
25 Followers 473 Following helping make me feel happy and proud of what I'm doing now
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Amber Ferrell @GrnEyedBttfly
158 Followers 2K Following I Love My Family, My Son & Mister Kitty Bob. I Love This Beautiful Planet, I Love Butterflies, Dragonflies and all Animals,
Ophelia Balls @OpheliaBalni
79 Followers 108 Following I’m a lady doing ladylike things. Also I’m Arsen’s loving wife. Shhhh, I’m hunting nazis.
Valeria Bolívar @Valeria5j5
17 Followers 1K Following The bright future only belongs to those that believe in the beauty of their dreams.
Jessica @Jessicacrf5
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Dr Nicola Clague-Bake... @Nicolabake0lb0
321 Followers 400 Following Physio researcher/Senior Lecturer @LivUni co-founder @physiosforme | PhD | neuro rehab/exercise physiology/ME/Longcovid/EDI/all views my own she/her
Marissa the spiritual... @Spiritual_76296
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JohnGalt_theone&only @JohngaltO
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@PortlandMaine @PortlandMaine4
364 Followers 2K Following I am a single issue voter: #civilrights #BLM #WarrenDemocrat #RecoveringAttorney #MECFS #MCAS
Tzed @Tzedioep
40 Followers 1K Following
✿ maddie 🎀 bloss... @maddiebbyvwy
7 Followers 69 Following 19 | Living for adventures & good vibes 💖 Traveling, laughing, loving life 🌸
Robert RedFordF150 @MI6_4freedom
5K Followers 7K Following Retired after 30 years military service, Dad, rescue dog home, proud Canadian. If you are Maga do not friend because we are not, and I block idiots.
Joycewillman @Joycewillmq9kf
38 Followers 313 Following
Alexander @ALXCGSV
1K Followers 922 Following Covid 🦠 | MECFS 🧬 | Enchephalitis | Misdiagnosed 🩺 | Poly drugged 💊 | Catastrophic iatrogenic injury & akathisia👨🦽| Advocating 🧠
Julia Gordon Brama @ClaraKategt1v
348 Followers 1K Following Tarot card reader,Author of tarot life lessons &The occult sylvia path (out now) both w/destiny books ; decoding #Sylvia plath series; host: mystic fix
Moonatic Supreme 🇺... @moonaticsupreme
2K Followers 4K Following Moon addict, New Yorker, long COVID+ME/CFS+POTS, NAFO, Jewish ally 🇺🇦✡️🟦
Rosella @rosaelljama
719 Followers 5K Following I am a sister Rosella from Gaza. My situation is very difficult. Please help me. I have 9 children to take care of. Please help me.
Gaza Oday Zarab @oday_zouro42324
1K Followers 6K Following Do good and it will come back to you. Please share my posts. I only have link CHUFFED DONATE, my friend, don't forget me, I only need $50.
Haneen Gaza @haneenaalm81479
1K Followers 7K Following O God, help us with what we see. By God, we are tired, the situation has overwhelmed us, and the affliction has become severe.
DM ME WITH YOUR CASH ... @mommaAlex01
10 Followers 462 Following
'The Ronster' @BerisfordRon
35K Followers 33K Following A prog music and Star Trek loving nerd Born in a storm of electricity in 1963!!! (Married) I rarely read or reply to DM’s!
Gregor McAbery @GregorMcAbery
2K Followers 6K Following one half of #McAberyPhotography co-founder Visions Photography Club. Scottish Lib Dem
Shadi & Rasha’s Fam... @Rasha_shadi26
368 Followers 4K Following Gaza | Father & husband 🇵🇸 Father of Khamous & Milana, fighting every day to protect my family. We just want to survive. 💔🍉
Sara Knox sexy 💋 @RoseHarryfqgl
71 Followers 613 Following
@mannagirl @mannaburger
18 Followers 246 Following Fighting 29 years of 90%+ toxic mold illness (CIRS/MCAS/Babesia/theileria). Racing against drug resistance to keep a promise to my 27-year-old son. 🤍
ME/CFS • DE • G 9... @Diagnose8E49
360 Followers 1K Following Postvirales Fatigue Syndrom (PVFS), ICD-11-Code: 8E49, inkludiert: Myalgische Enzephalomyelitis (ME) + Chronisches Fatigue Syndrom (CFS) Team: #pwME 🧬🔬📣
Kate Davis @KateDaviswwz1
457 Followers 3K Following
Bhupesh K Prusty @BhupeshPrusty
16K Followers 65 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Lizzy H @hopefullizzy
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Janet Dafoe @JanetDafoe
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Dan 🦠➡️🧠�... @Dan_Wyke
14K Followers 5K Following Severely ill M.E. patient; person-centred counsellor (not practicing); recovering poet (Rack & Waterloo Press)
Anil van der Zee © @AnilvanderZee
11K Followers 897 Following Former professional ballet dancer | Bed- and wheelchair bound M.E. patient | Using ✖️ to raise awareness for #pwME | #IACI #art2cureME #pwme #millionsmissing
Tom Kindlon @TomKindlon
16K Followers 623 Following With ME 37 years (32 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 29 yrs
Christoph Ströck @cstroeckw
9K Followers 823 Following Soon, people will look back in disbelief at what happened to patients with ME/CFS | Co-founder @weandmecfs | Godspeed 🙇🏼
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 40 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
ME/CFS News @MECFSNews
14K Followers 669 Following I used to post news and interesting information on ME/CFS but have retired to focus on other things.
Wading through treacl... @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Adam @ABrokenBattery
8K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Sten Helmfrid 🇺�... @StenHelmfrid
8K Followers 188 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Whitney Dafoe @DafoeWhitney
12K Followers 96 Following Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
Jo @cfs_jo
4K Followers 2K Following ME & POTS, Still me. Sense of humour intact. Proud “Anti-Recovery Activist” (sarcasm). “Privileged senior adult child” - Brad
John K @j_b_kennedy
17K Followers 6K Following I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling
Naomi Harvey “PhD W... @Naomi_D_Harvey
17K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
davidtuller @davidtuller1
11K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Vlad Vexler @VladVexler
24K Followers 1K Following Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Grew up in USSR, Isr, UK. Home is London | Living with ME since 2003. | 🔗 🎥
Adam @AdamFulwell_
91K Followers 978 Following
@Riemerville @Riemerville
4K Followers 4K Following Im still here… probably some typos #CleanAirInSchools #MEMafia
a tired human @saffronandsky
3K Followers 2K Following disability justice. mod chronic illness for decades. long covid in '22 = v. severe MCAS+ME&POTs=bedbound. Xennial, parent, mixed race, writer, gardener ♿ 🏳️🌈
Jan Sussex 🇬🇧�... @JanSussex
4K Followers 4K Following I stand with Ukraine. NAFO Love animals and the sea. Living a 1/4 of a life due to #MyalgicEncephalomyelitis, lost my future.
Emma Knight 💙 @eknight8
159 Followers 301 Following I’ve two autistic, hypermobile sons (one with PDA), one sadly has ME, EDS, PoTS. Scientific background, interested in research in these areas. Avoiding covid.
#MEActionMaryland @MEActMaryland
589 Followers 2K Following Maryland Chapter of #MEAction Network: advocacy, education & support for people with Myalgic Encephalomyelitis #MECFS & complex chronic illnesses in the DMV/MD
Rich & Figgy @windscattered
154 Followers 78 Following Need urgent life-saving care in Germany | All support appreciated ❤️ | GoFundMe | Figaro's got my back as always 🐈 | Myalgic Encephalomyelitis @millionspod |
Mark the Hatter @moreofaswimmer1
2K Followers 3K Following The Luton. Fighting for better lives for ME/CFS sufferers.
Stefan Arce ME/CFS @stefan_arce
671 Followers 67 Following #severeME/CFS #disautonomia #bedridden #encefalomielitismialgica #POTS
Nadiia Omelchuk 🇺�... @Ukrainian_Art_
8K Followers 4K Following Ukrainian artisan 🇺🇦 Unique handcrafted jewelry. ✈️ Worldwide shipping 📩 DM to order! ☕️ Support my work / PayPal: [email protected]
Sofiryan @Sofiryan159113
132 Followers 911 Following
Ciara Wright PhD, Pos... @CiaraGlenville
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Amanda Bennett @AmandaB55744931
2K Followers 338 Following Usually up mountains, sidetracked by long covid since Dec 2020. Now also at @amandabennett.bsky.social
Stephen Goldsmith @GoldyWMS
731 Followers 256 Following Education. Events. Football Broadcasting. @WiseMenSayPod @sunderlanduni @IRNRadioNews @RTEsport @BFBSRadioHQ
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3K Followers 367 Following Did we annoy you so you’ve come to check our profile? We also do a podcast, which is shite.
Jack | amatica health @JackHadfield14
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Rohit Gupta @rohit0logy
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FOUNDED1879 @Founded1879
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Jonny Hawley @HawleyJonny
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Danny Collins @DC___6
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Mark Goldbridge @markgoldbridge
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Great Britain Basketb... @gbbasketball
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Ryan Daigler - Exposi... @Ryan_Daigler
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Dr. Nicole LePera @Theholisticpsyc
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ThereForME @ThereForME_UK
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Hayley Gleeson @Hayley_Gleeson
4K Followers 1K Following journalist at @ABCNews. cat lady. likes words, food, bikes, books. https://t.co/hlxgMhSF9k
Steve Fifield @stevef... @SteveFifield3
668 Followers 1K Following Informed decisions from verifiable truth & facts please. Avoid unsubstantiated opinions / beliefs. #Equality #justbe #inclusion #LGBT+ ally. ME/CFS 😢 #pwme
Gwyn @gw411954
346 Followers 934 Following once was someone, did things. very severe M.E. took it all.
Thomas Manwell @thomasmanwell
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Emerson Green @waldenpod
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Wilson Isidor @IsidorWilson
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Jo Greer @DrJoGreer
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Michael Stonehouse @uchitelstoney
151 Followers 798 Following Former Science Teacher & Local Councillor. Leeds fan & eco-socialist. Suffered from ME/CFS since 2012
Prof Alice Roberts�... @theAliceRoberts
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Chef Reactions @ChefReactions
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Kirsty Schnickelfritz @KSchnickelfritz
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Razzelfratt @KRazzelfratt
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Emily Goss @BarrowMember
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PolyBio @polybioRF
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Karen Hargrave @karen... @KarenLHargrave
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Simone Biles @Simone_Biles
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