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Project ALS @ProjectALSorg

Project ALS identifies and funds the most promising scientific research that will lead to the first effective treatments and, ultimately, a cure for ALS. projectals.org New York, NY Joined January 2010
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Project ALS @ProjectALSorg

4 days ago

A donor-advised fund is a charitable giving account that lets you set aside funds now and recommend grants to nonprofits you care about over time. By recommending a grant to Project ALS, you can help support the collaborative research moving us closer to a future without ALS.

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Project ALS @ProjectALSorg

5 days ago

Meet Riley. This November, she will be taking to the streets of New York City with the rest of #TeamProjectALS at this year’s #NYCMarathon in honor of her grandmother, who lost her battle with #ALS. Cheer Riley on and support her run here: bit.ly/4y9qfry! 📢

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Project ALS @ProjectALSorg

6 days ago

The news we have dreamed of is finally here: the Phase 3 FUSION trial for ulefnersen, the treatment that began as jacifusen, met its primary endpoint. This is history-making news for FUS-ALS. Learn more: bit.ly/4zcHKaT

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Project ALS @ProjectALSorg

4 weeks ago

If you could ask an ALS researcher one question, what would it be? Maybe it’s about a clinical trial, a specific gene, why some treatments work for some people and not others, or maybe your question is simply, “What’s taking so long?”

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Project ALS @ProjectALSorg

4 weeks ago

Team Project ALS is officially headed back to the TCS New York City Marathon! 41 incredible runners will take on 26.2 miles through New York City with one shared goal: supporting the research working toward effective treatments and a cure for ALS. #TeamProjectALS #NYCMarathon

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Project ALS @ProjectALSorg

a month ago

Jenifer’s legacy lives on in every step we take toward a future without ALS. We will not stop pushing the science forward and fighting this disease until there are effective treatments and a cure. Donate to support ALS research: projectals.org/?form=donate

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Project ALS @ProjectALSorg

a month ago

The Project ALS Therapeutics Core is studying protein toxicity—the protein clumps that form in neurons not only in #ALS, but all neurodegenerative diseases. What we’re learning about protein toxicity at the Core informs drug discovery across these diseases.

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Project ALS @ProjectALSorg

a month ago

We want to hear from those living with ALS: If you could save one part of yourself from the ravages of ALS, what would it be? This is a safe space for discussion, and there’s no right answer. Share with us in the comments. 🫂

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Project ALS @ProjectALSorg

a month ago

There’s a lot happening in the search for effective treatments and a cure for ALS. Stay in the know with our latest research, Project ALS Therapeutics Core updates, community stories, events, and more. Join our mailing list: bit.ly/3RZOYyV 📩

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Project ALS @ProjectALSorg

a month ago

@MinoShah We've made progress - thanks for asking! We had a clinical trial update in June. If you'd like a proper update, you can watch it here: bit.ly/45ZXfpL

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Project ALS @ProjectALSorg

2 months ago

sorry we forgot our password. we were also a bit busy continuing our mission of finding and funding a cure for #ALS. anyway, we're back.

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Project ALS @ProjectALSorg

2 months ago

Just over a week ago, @isaacboots dedicated his Ice Bucket Challenge to Project ALS after the Hamptons got TORCH’D for ALS research! 🧊🔥 Thank you to everyone who broke a sweat and donated to help fund ALS research.

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Project ALS @ProjectALSorg

2 months ago

About 90% of people with ALS have no family history of the disease. The Project ALS Therapeutics Core is using AI to study samples from people with sporadic ALS, identify potential subtypes, and explore which targeted therapies may work for whom.

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Project ALS @ProjectALSorg

2 months ago

This past Sunday, July 26th, we celebrated the Americans with Disabilities Act (ADA) 36th Anniversary. Project ALS is proud to support the Americans with Disabilities Act (ADA) 36th Anniversary. Learn how you can too, here: adaanniversary.org #ADA36 #ThanksToTheADA

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Project ALS @ProjectALSorg

a year ago

Most importantly, the workshop laid the foundation for a new era of collaboration. Read the full workshop recap to see how Project ALS and the Packard Center are reshaping ALS research through partnership, innovation, and urgency. projectals.org/alsmodeling

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Project ALS @ProjectALSorg

a year ago

For scientists working to understand how ALS begins and progresses, developing better lab-based models is essential. Over three days, participants shared new findings, pressing frustrations, and bold ideas to push science forward.

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Project ALS @ProjectALSorg

a year ago

ALS affects motor neurons, the critical nerve cells in the brain and spinal cord that enable movement. But these cells can’t be biopsied to study in a lab. So how can we investigate what is happening to a motor neuron inside a person living with #ALS?

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Project ALS @ProjectALSorg

2 years ago

To learn more about the NIH budget and grant-making process, visit grants.nih.gov/grants-process or nih.gov/about-nih/what…. Project ALS remains committed to full transparency as this situation unfolds, and to our mission: finding a cure for ALS.

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Project ALS @ProjectALSorg

2 years ago

...rely on for access to potential therapies. We urge you to contact your local representatives—people living with ALS, and anyone affected by disease, deserve better. The @alsassociation has created a resource to connect you with your Members of Congress: bit.ly/4kdG75Y

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Project ALS @ProjectALSorg

2 years ago

The NIH is the vital ecosystem within which the United States has become a global leader in healthcare and drug development. The proposed cuts threaten critical preclinical and clinical research, and would disrupt the entire drug development pipeline that people living with ALS..

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Project ALS @ProjectALSorg

2 years ago

While Project ALS research currently remains on track, it will be extraordinarily difficult to keep pace with our progress if the planned cuts to NIH become reality.

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