MBNF.ca @MBNFSupport
Manitoba Neurofibromatosis Support Group empowers their friends with NF and raises awareness. 1 in 3000 affected; tumour growth and other symptoms. 🇨🇦 mbnf.ca Manitoba, Canada Joined May 2013-
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MBNF.ca retweeted
ICYMI: The NF Data Workshop 2026! Our new recap & reference guide brings together the tools from the workshop: the NF Data Portal, NF Target Discovery Hub (in Pluto), NF Registry & hands-on GitHub tracks, so you can put them to work in your research. 🔗 ctf.org/drug-discovery…
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MBNF.ca retweeted
CTF acts now so treatments are available when patients need them. At the 2026 #NFConference, researchers shared new ways to target tumors, repurpose drugs, use AI to accelerate research & address challenges like pain + sleep. Explore the top stories: ctf.org/news/2026-nf-c…
MBNF.ca retweeted
MBNF.ca retweeted
Did you know that NF occurs in 1 in every 2,000 births—impacting over 4 million people worldwide? This #NFAwarenessMonth, learn and share these NF facts! Visit makenfvisible.org to learn more! #EndNF #MakeNFVisible
MBNF.ca retweeted
NF1 affects 1 in 2,500 births and often shows up in childhood. Signs include café-au-lait spots, neurofibromas, and learning challenges. There is no cure yet but knowledge is power! 💙💚 Share this infographic & visit makenfvisible.org to learn more! #EndNF #MakeNFVisible
MBNF.ca retweeted
Lainey just five years old when she was diagnosed with NF1 and 2 optic gliomas. Now 8, she’s proudly spreading awareness and inspiring others about her condition. 💙💚 Read Lainey's Story of NF here: 🔗ctf.org/news/story-of-… #EndNF #MakeNFVisible
MBNF.ca retweeted
Following the AI doll trend, we uploaded a picture of a person with facial palsy to reflect our NF2 community. We tried 3 photos & each time it corrected the face and levelled out the smile We are funding life changing research so that NF2 tumours don't cause facial palsy #endNF2
MBNF.ca retweeted
👋Meet Sarah Morrow, a recent Young Investigator Award recipient! Her research focuses on MPNST tumor growth in NF, bringing us closer to personalized treatments for patients. Learn more here: 🔗go.ctf.org/yia2024_QAmorr… #EndNF #MakeNFVisible
MBNF.ca retweeted
Catherine was diagnosed with NF at 6 months and has met every challenge with strength and heart—but she’s never let them define her growing up. She’s a proud graduate, animal lover, and dedicated shelter volunteer. Read more: 🔗 ctf.org/news/story-of-… #EndNF #MakeNFVisible
MBNF.ca retweeted
Neurofibromatosis (NF) is classified as a rare disease. While NF affects 1 in 2,500 people, funding for research and treatment remains scarce. This Rare Disease Month, let’s change that. Donate, share, and advocate to help find a cure for NF and all rare diseases! #EndNF
MBNF.ca retweeted
Big thanks to the @ChildrensTumor for their incredible Adult Guide on Living with NF! 🙏 Their support and resources make a world of difference for those navigating life with Neurofibromatosis. Click the link in our bio to download a free version today! #CureNFwithJack #EndNF
MBNF.ca retweeted
Explore Dr. Yang Hou & the DEaR Lab’s work on cognitive health and NF1. Dr. Hou is also seeking participants for two exciting studies: SMART-NF1 & NF1 Cognitive Aging. 🔗med.fsu.edu/houlab/home 🎥 Watch Dr. Hou’s NF Knowledge Webinar here: youtu.be/-6wu7BrboF4 #EndNF
MBNF.ca retweeted
⏳ Early bird rate for the NF Summit ends Feb. 28! CTF’s annual NF Summit brings together NF patients, families, researchers, clinicians, and advocates to learn, connect, and find renewed inspiration to fight NF. 🔗 Register now: nfsummit.org #EndNF #NFSummit
MBNF.ca retweeted
🧠Join us for the next NF Knowledge Series Webinar: Gomekli (mirdametinib), the Latest FDA-Approved Treatment for NF1 tomorrow, February 21 at 12:00 PM ET! 🔗 Register now: ctf.zoom.us/webinar/regist… #EndNF #Webinar
MBNF.ca retweeted
MBNF.ca retweeted
FOR CLINICIANS: Join us for a Continuing Medical Education (CME) Lecture Series for Neurofibromatosis Type 1- Related Plexiform Neurofibromas Tuesday, February 18, 2025 3PM PT / 6PM ET Click here to register: go.ctf.org/3CLWbea
@NicoleRayyMusic Happy Halloween from your friends in Manitoba!!!
MBNF.ca retweeted
- British actor Adam Pearson, 39, co-stars in "A Different Man." - Pearson, who has neurofibromatosis, plays Oswald, a character with confidence despite the con ... Read more → newstokapp.page.link/rj6C #entertainment #movie #neurofibromatosis
MBNF.ca retweeted
💙 @SouthwarkNews highlights Oliver Bromley's experience of discrimination due to NF1. Watch his powerful interview and learn more about his story. 🎥📰 Read more: shorturl.at/35qa7 #NF1Awareness #SouthwarkNews #EndDiscrimination #StandWithOliver #Neurofibromatosis
MBNF.ca retweeted
With @A24's #ADifferentMan bringing NF into the spotlight, we’re here to make sure the full story is told, plus answer the question you might be asking: should I go see the film? Click to read our close-up on “A Different Man”: ctf.org/news/bringing-… #EndNF #makeNFvisible
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